Archie Battersbee, who suffered “devastating” brain damage, died after his life support system was disabled.
Her mum, Hollie Dance, stood outside the hospital and said she was “the proudest mum in the world”.
She said Archie was “such a beautiful little boy and he fought until the end, and I’m so proud to be his mum.”
He died at 12.15pm, Ms Dance said.
“He stopped taking his meds at 10 a.m. and his stats were stable until two hours later when they took the vent off,” said Ella Rose Carter, fiancée of Archie’s older brother. , Tom, on behalf of the family.
“There is absolutely nothing dignified about watching a family member or child suffocate.
“We hope that no family will have to go through what we went through. It’s barbaric.”
Ms Carter and Archie’s mother then collapsed in each other’s arms, cried, hugged and slowly walked back to the hospital.
The 12 year old child had been at the center of a long legal dispute after being seriously injured in an incident at his home in Southend, Essex, in April.
He had been in a coma since then and had not regained consciousness, being kept alive by a combination of medical interventions including ventilation and drug treatments.
Alistair Chesser, chief medical officer at Barts Health NHS Trust – who oversaw Archie’s care – said in a statement: “Members of his family were present at [Archie’s] bedside and our thoughts and sincere condolences are with them at this difficult time.
“The Trust would like to thank the medical, nursing and support staff in the pediatric intensive care unit who cared for Archie after his horrific accident.
“They provided high quality care with extraordinary compassion for several months under often trying and distressing circumstances. This tragic case not only affected the family and their caregivers, but touched the hearts of many people across the country. “
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This notice was published: 2022-08-06 05:00:00